The International League of Dermatological Societies

Chair, Distinguished Delegates,

The International League of Dermatological Societies welcomes the recognition of rare diseases as a global health priority for equity and inclusion. We wish to highlight rare skin conditions, including occulocutaneous albinism, ichthyosis and epidermolysis bullosa, and many others, which often require lifelong multidisciplinary care and place a significant burden on individuals, families and health systems.

We support efforts toward a coordinated global action plan for rare diseases and emphasise the importance of stronger collaboration, research, registries and health information systems to improve visibility, diagnosis and care pathways. Integrating rare diseases into national health planning and universal health coverage efforts will be essential to addressing longstanding inequities in access to care.

Thank you