WHO Secretariat has developed the discussion paper on the Global action plan for rare diseases 2028-2038 (GAP-RD), which is available in the English language.
WHO invites Member States, United Nations (UN) agencies, relevant international and national partners or non-State actors, including nongovernmental organizations, private sector entities, philanthropic foundations, and academic institutions, and people with lived experience to provide inputs on the discussion paper and inform the drafting of GAP-RD.
WHO will publish anonymous summaries of all comments received during the consultation process. All comments submitted are subject to review by WHO before publishing. WHO reserves the right not to publish comments that are deemed inappropriate due to offensive language, advertising or personal promotion. WHO is not responsible for the different views expressed.
The consultation is open until December 4, 2026 23:59 CET.
Please note that the survey will time out after one hour. To ensure that you do not lose any data, we encourage you to save your responses. Click here to preview the list of questions.
Should you have any questions related to this web form, or should you wish to submit your responses via email, please contact rarediseases@who.int.
There are 72 questions in this survey.
